ABOUT
This website is provided by the Mikaere Foundation, a charity for children with NKH.
We want to provide the best information for families affected by Nonketotic Hyperglycinemia (NKH). That’s why we ask those living with NKH, their families and medical experts to help us put our resources together. It’s also why we are accredited by the Patient Information Forum.
Always get individual advice
This website contains general information about Nonketotic Hyperglycinemia (NKH). But, if you, or a family member has a problem, you should get individual advice from a medical professional. We work very hard to give you the latest facts, but some things change, and we don’t control the information provided by other organisations or websites.
How did we do?
Tell us what you think of this wesbite, or to request a list of the sources we used to create it, email us at hello@mikaerefoundation.org.
We welcome any feedback that you may have, and it will support us to keep creating resources to support the NKH community.
This website was last updated on 27 December 2025. The next review date is 27 December 2026.
Accessible formats
Let us know if you need this information in print, audio, large print or braille formats: hello@mikaerefoundation.org
The Mikaere Foundation is a UK charity that supports families living with Nonketotic Hyperglycinemia (NKH). We are dedicated
to funding NKH research and providing hope, support and information to NKH families.
www.mikaerefoundation.org
This website was made possible with a grant by Lifetime Chances, a registered charity supporting disabled children. Thank you, Lifetime Chances!
The information on this website is certified by the PIF TICK, which indicates health information you can trust. The independent trust mark lets you know information is evidence-based, up-to-date and easy to use and understand.